SHALLOW by Lady Gaga & Bradley Cooper 2nd try Two things happened today: I watched A Star is Born for the first time. And I my chronic invisible illness decided to flare. I’m currently in so much physical pain, every joint feels like it’ll never work again, it’s agony on my feet to walk to […]
Too Tired For This Shit
So so so fucking tired.
And so so so fucking tired of feeling tired.
But it’s okay, because all I have to do is look at nature’s flowers and my spirits are uplifted, I’m suddenly riding a raging florgy.
And I can always just think of happy thoughts and that will make me well again, too.
The only thing I’m more tired of, than feeling tired of feeling tired, is the bombardment of people (both on and offline) telling me that all my health concerns will be gone if I’m just more positive, or if a do their latest favourite juice cleanse or whatever other naive piece of advice they desperately need to offload onto me.
I am waaaaay too tired for this shit. It makes people frustrated when others give this sort of unsolicited advice, and it gives way to much power to the shame game.
Miracle cures … something, that after 30 odd years of hoping for, I now have a healthy understanding of just how non-existent they are.
I wish we all, in the health/chronic illness realm, could support and respect each other and not force the strategies that work for us, down other’s throats.
Note I used the term ‘force’. I think it’s great for us to share the things that work for us, but I also think it’s very important to do so with the acknowledgement that we realise our strategies might not work for everyone. This is how we share information that might actually serve our community, that might be incredibly helpful, whilst also supporting and holding each other up.
Crazy health journeys are difficult and isolating enough.
Let us celebrate our shared experiences as well as our differences.
I’m the only one of me. And you’re the only one of you.
We can only manage our lives with what works for us individually.
So if flowers and nature does help you, fantastic.
If your hobby helps you, great.
If your job helps you, brilliant.
If animals or your family do it for you (in an appropriately boundaried manner), fan-bloody-tastic!
All I’m really saying is that I think it’s so wonderful and useful to have something in your life that helps you to keep on keeping on, but let’s not become part of the shame game — let’s continue to help a spoonie out.
P.S. *Spoonie, in short, references to people living with chronic illnesses.